Exciting Information about ESIC 2015 – European Sensory Integration Congress, Birmingham

I’m really excited that next week I will be attending this congress in Birmingham. I really hope some of you will be there for me to meet you.

I am blessed that I have had lots of support in being able to get there in person. From help with the kids, house and business, to encouragement, support and financial assistance from the people I work and volunteer for.

I just wanted to let you know that if you cant actually attend for whatever reason that there is a way that you can still participate and hear the speakers. I don’t normally share this stuff or advertise on behalf of others but I know that this is something that I would want to know about, and thats why I am sharing it here in my personal space.

I am especially excited that it is totally affordable and so accessible to way more people.

http://www.esic2015.eu/esic-2015-live-webcast

So for only £29.99 you can register online and view the keynote speeches and presentations from the Great Hall taking place on Friday and Saturday’s Scientific Programme via the live webcast (more information below).

This is awesome, because you can do this from anywhere in the whole world, without having to travel, or find child care or get loads of time off work. I am sharing this because I am passionate about SI, and I want as many people as possible to be able to have access to the information we have had.

I hope you can join us,

Sarah x

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We are really excited to let you know that the keynote speeches and presentations in the Great Hall at ESIC 2015, taking place on 11 and 12 September, will be streamed live for the two days. This fantastic addition to the Congress gives all our colleagues across the globe the opportunity to be a part of ESIC from the comfort of their own chair.

Keynote speeches include experts Dr. Zoe Mailloux, Prof Roseann Schaaf, Dr Diane Parham, Dr Tina Champagne, Professor Batya Engel-Yeger, Dr Susanne Smith Roley and Éadaoin Bhreathnach.

For just £29.99 you can register online and view the keynote speeches and presentations from the Great Hall taking place on Friday and Saturday’s Scientific Programme via the live webcast.

  • As part of your experience you will have online access to all the presentations and posters being exhibited over the duration of the two days.
  • As a member of our virtual audience, you will also have access to our delegate only social media, ESIC2015 group via Facebook. The social media team will be on hand, so that some questions from our virtual audiences can be included in any questions posed to the speakers.

Register your place now using the “Add to Bag” button above and be a part of Sensory Integration of the future. We hope you can join us!

ESIC 2015 Live Webcast Programme


DAY 1 FRIDAY 11TH SEPTEMBER 2015

09:15 – 9:30   Welcome
Rosalind Rogers, Chair of SI Network

09:35 – 10:05   The Power of Vision (and ALL the senses!): Looking Toward the Future for Ayres Sensory Integration.
Dr Zoe Mailloux

10:10 – 10:40   Evidence for Ayres Sensory Integration.
Professor Roseann C. Schaaf

10:45 – 11:15   Sensory Integration Intervention a Neurosequential Approach to Development Trauma
Éadaoin Bhreathnach

11:15 – 11:45   Break

11:45 – 12:15   Sensory processing and performance of adults in the workplace.
Annamarie Lombard

12:20 – 12:40   Participation challenges in Children with ASD and Somatodyspraxia.
Susanne Smith Roley

12:45 – 13:15   Proprioceptive Processing Patterns in Children with Autism and their contribution to Praxis and Participation-Preliminary results.
Elisabeth Soechting

13:15 – 14:00   Lunch

14:00 – 14:30   Ayres Sensory Integration and the experiences of a child with cochlear implants and sensory over-responsiveness.
Stefanie Kruger

14:35 – 15:05   Integrating Ayres Sensory Integration and DIRFloortime in the intervention with children with autism spectrum disorders.
Judith Abelenda

15:10 – 15:35   Applying Ayres Sensory Integration in Psychology.
Lourdes Guzman and Adriana del Carmen Castillo Sánchez Lara

15:35 – 16:15   Break

16:15 – 16:45   The ASI 2020 Vision & Mental Health Applications.
Tina Champagne

16:45   Close


PROGRAMME DAY 2 SATURDAY 12TH SEPTEMBER 2015

09:00 – 9:30   Sensory Processing Disorders– The Bridge between Underlying Neurophysiological Mechanisms and Daily Life.
Professor Batya Engel-Yeger

09:35 – 10:05   The Meaning and Implication of Sensory Experiences for Participation: The Voice of People with Autism Spectrum Disorders.
Eynat Gal

10:10 – 10:40   A Vision for Assessment in Ayres Sensory Integration.
Diane Parham

10:45 – 11:15   Toward Best Practice: Education in Ayres Sensory Integration ®
Susanne Smith Roley

11:15 – 11:45   Break

11:45 – 12:15   The effectiveness of various strategies based on Ayres SI model in intervention to children with SI Disorders.
Svetlana Kashirina

12:20 – 13:10   Community Occupational Therapy for Learning Disabilities, the process of providing Ayres Sensory Integration Therapy and approaches to this population.
Rachael Daniels andPam O’Hara

13:10 – 14:15   Lunch

14:15 – 15:00   “Is it Sensory or is it Attachment?” A case report of Ayres Sensory Integration Intervention with an adult male with Asperger’s Syndrome.
Ros Urwin and andÉadaoin Bhreathnach

15:00 – 15:45   Evidence for the effectiveness of occupational therapy using Ayres’ Sensory Integration approach as confirmed through the ASI Fidelity Measure.
Elisabeth Soechting

15:45 – 16:15   Break

16:15 – 16:45   The realities of SI assessment and intervention in third world settings
Annamarie Van Jaarsveld

16:45 -17:00   Closing Speech

Love, Jean – book

A kind friend has lent me this book and I am loving it,

The book is unusual in that it is a compilation of letters written by a.Jean Ayres who pioneered Sensory Integration theory and practice to her own nephew Philip R, Erwin, Philip’s story is written in his own words and there are many fantastic chapters written by Zoe Mailoux who was one of Jean Ayres’ first research assistants.

Philip had sensory processing difficulties but was unable to be treated directly by Jean Ayres or any other OT and so he engaged in an education and consultation process with his Aunt via letter. This indirect long distance “therapy” by letter consisted of consultation and monitoring – advice and recommendations which included sensory strategies.

It was life changing for him as it has been for our family.

I am so passionate about access to SI intervention for as many children as possible because I have watched a similar transformation in Charlie. It is touching my heart to read about the impact of SI by someone who had experienced it directly and was able to write about it in his own words. It is so encouraging when the going gets tough to remember that it is worth all the effort, and this is why.

Here is an extract from the book where Philip describes how Si changed his life.

“Looking back I remember the feeling of calm that came over me as I went through the therapy regimen so long ago. Before I started scooter boarding, I felt like I was trapped in an exoskeleton. I was all corners and edges. I moved in limited, uncomfortable patterns. When my bony carapace and I bumped into unexpected objects, my hardness made compromise impossible. I had to back up and yield. I had to constantly pick routes through life that wouldn’t trap my bones and me in tight corners or dead ends out of which I would be unable to extract myself. But after scooter boarding for a while my hard, exterior shells fell away. I became suppler. When I met an obstacle I was often unable to move delicately around it, perhaps squeeze by it, or mold myself into a shape or configuration more in harmony with it. After months of therapy, I had shed and regrown my shell so many times but less and less of it grew back after each shedding.

What Jeanie and Sensory Integrative therapy did to me was to re-wire me. While I experienced little improvement in my mathematical abilities, I was able to construct strategies that circumvented my shortcomings. My brain became more organized, less threatened by all of the things that the world was asking of it. I could pay attention. With these fundamental changes, coupled with the support from my family and the validation of my teachers, I was able to utilize a host of coping skills that had previously been looked down upon.”

There is now so much evidence for life long neuro-plasticity, Philip was older than the ideal age for starting SI therapy however the results of following his programme of sensory strategies were still enormous. We often search for complicated answers, strict protocols or diets to effect change for our kids, we want a recipe that works…Philip says this about what worked for him, it made so much sense to me that I wanted to share it with you.

“In the end, sensory integration therapy, special education support, and personal validation from my family, teachers and friends were the protocol that built the positive upon the positive, put the negative into context and made it survivable, and offered boundless points of opportunity that have seen me through to this day”  

Learning to say ‘NO’.

This week I have been ask to think about why I find it so hard to say no…

I have not really thought about this too much before, which is probably why I keep getting myself into a mess but actually I am truly awful at saying no, I mean really, really bad at it bad at it. I have some talents but saying no is definitely not one of them. As a result I take on too much responsibility and I always seem to be doing too much. The solution is not as easy as just stopping, or starting to say no more often, I don’t even know how to slow down, never mind stop. Saying no is not something that comes naturally to me, in fact the more I think about it the more I see that it is actually something which is painfully difficult for me to do.

This morning I had my first appointment for CBT, that’s where the question came from. The doctor recommended it as a therapy after I reached crisis / burnout point back in February. Previous to that particular crisis things had been ticking along just about OK, with me keeping most of the balls in the air most of the time and most of the people happy most of the time. Then Charlie hit a phase of not sleeping through the night any more. For the 6 weeks after Christmas he managed to wake us up at some point every single night. Once awake I would lie there worrying about the million things I had to do the next day. It didn’t take long of me not sleeping before I found I could no longer keep all the balls in the air. I hit crisis point and in the end I had a meltdown at work, precisely because I had failed to say no to doing a job which I not only did not want to do but which I knew would have a negative impact on the rest of the family for days afterwards.

So here I am trying to put things back together again and figure out why it is that I get to the point that I am doing way to much and try to learn from it so that I can change my pattern of behaviour.

So far here are some of the reasons I have come up with…

Thinking Positive

I tend to think positive and I like to have a ‘Can-do’ attitude to life. I honestly believe that nothing is impossible, with prayer and hard work anything can be achieved. This is good in most situations, and has served me well over the years but unfortunately I have taken it to the extreme. My first instinct when I am asked to do anything is to think through all the possible ways that I can make it happen, I do this before I think through the consequences, or the implications. Often I have said yes in my head before I have even processed the question.

Putting others first

I often put others first, all mothers do this with their kids, but I do it with other people too. I find it really hard to make myself number one priority, I find it hard to spend money on myself but easy to spend money on friends or the kids or the house, but never me. I tend to see other people as being far more worthy of my time, effort and energy than I am.

I am a people pleaser

I love to meet other peoples needs, to do jobs for others, help others out when I can. I find it easy to empathise with other peoples situations and often end up carrying the burden for other people needlessly. I get satisfaction when I know that I have done something useful for another person.

My primary love language is ‘acts of service’. I feel loved and that my needs are being met when someone goes out of their way to do something helpful for me, and I show love most easily through helping others, its the way I connect with the world.

Guilt

When I have to say no, either when a yes would be completely impossible or I have really worked up the courage to put my foot down over something, I feel guilty afterwards, for a long time. I feel bad for the people for whom my no has had any kind of negative impact on their lives. Even if the decision is final I still try to find ways in my imagination that I can make it happen. This is exhausting and pointless but I often do it anyway.

I feel responsible

Its part of who I am, the oldest sibling, a founding trustee, a manager, a parent, a teacher, a landlady, a neighbour, a friend, a leader, a community champion. I take responsibility for so much stuff, I find it incredibly difficult to just let go, I find it really hard to “not care”

I have strong role models

I have incredible, amazing and strong women in my life as my role models. I have learnt by example that I can be a leader, that I can achieve that nothing can stand in my way. I am extremely grateful to these women, especially my mum, and Gran who have always shown incredible tenacity and strength in the face of adversity, and who lead our family by example.

But now I have to find a balance and I have to find it soon. I have to practice saying no, so I’m going to apologise to those of you who know me in real life, especially if I have to practice my new word with you, and I am sorry that for some people that will mean change. I am learning that when scripture tells us

“I can do all things through Christ who gives me strength” it doesn’t mean that I should do all things.

Saturday, trampolines and feeding therapy

Until recently I have hated Saturdays, I have been trying and failing to balance the tiredness from having worked all week, with the desire to do something fun and healthy with the kids.

I needed to find something affordable which would tick all the boxes (yes, I know that’s kind of not actually possible but I needed to try). I really wanted something that would contribute to Charlie’s sensory diet, get us out of the house and away from the computer screens, be sociable, affordable (did I already say that?) and suitable for both children. I also desperately wanted to use the time to work with Charlie on messy food play. It’s not like I was asking for much???

The need to find the right thing was driving me crazy, and I was often left feeling deflated and deeply unsatisfied with whatever new thing or place we tried. There would be meltdowns in new places, sometimes the kids often just me. We are all so busy during the week and the sense of urgency to make Saturdays count was beginning to get on my nerves and I in turn was beginning to get on everyone else’s nerves.

About 6 weeks ago we were encouraged by a friend to try leaps and bounds, which is a trampoline club especially for kids with ASD and their families. I find it scary trying new places and seeing the noise and chaos of the other kids when we got there I must have had a similar expression to a rabbit caught in headlights. But in we went anyway, and thank God when we got in there I spotted some of the friendly faces of the other wonderful ASD parents we have got to know over the last year.

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The kids enjoyed their first session they had 3 or 4 turns of jumping, and while they waited there were plenty of other kids to play with, space to run around and soft play blocks to build with or hide inside. The teachers are lovely and are great with the kids, helping them and teaching them new moves each week.

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When we got home they were happy and calm and relaxed, now you can read all you want in sensory books about the benefits of this kind of proprioceptive input and how it regulates kids nervous systems, but to see the change in action is something else. They are almost like different children.

A few hours after getting home from our first session Charlie asked if he could play in his slime! Yes play in slime, this is almost unheard of, the slime was a prize he had won in school weeks before, once he realised how messy and sticky it was he was absolutely not interested in playing with it. It had sat on the shelf in the living room for weeks until this happened.

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Over the weeks we have noticed again and again how the massive dose of proprioceptive input from being on the trampoline, has a huge impact on Charlie for hours afterwards, which is great because it is giving us lots of opportunities to work on feeding therapy / messy food play afterwards. We are doing our best to follow the SOS feeding therapy method of introducing Charlie to new food experiences, we use this alongside “family style” meal serving and division of responsibility at mealtimes.

Charlie’s SOS feeding programme should consist of regular sessions involving a huge amount of regulating activity, heavy work, proprioception, deep pressure, followed by some fun activities involving food. Its hard to manufacture this in an artificial way, especially when we are all tired and I am feeling anxious, but this new Saturday routine seems to be working really well for us at the moment. In the hours after trampoline club Charlie is really really happy to have a go at food prep or messy play, it is fun to watch him relaxed and happy having a go at getting his hands and face dirty.

This Saturday we made Chocolate rice crispie cakes, everyone enjoyed the activity, Charlie helped lick the bowl clean, and got chocolate on his face, another first. What was also interesting was that hours later and the next day once the effects of trampoline club had worn off he wasn’t one bit interested in eating the finished product.

 

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I’m finally starting to look forward to Saturdays, the added bonus is that while the kids jump and play I get to spend lots of time with my lovely new friends. Did I tell you about all the amazing parents I have met since Charlie’s diagnosis? Honestly these are the people who save my sanity, wonderful, beautiful, honest, quality people, one of them took this photo of me….

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Finally, I have a food thief

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Yesterday the funniest thing happened, I was sitting down with a cup of coffee for 5 minutes and I decided to have a sneaky treat. I just love these yummy caramel waffles and have found that I can buy the in Aldi at less than half the price of some of the other places that sell them .

I was just tucking in to my moment of self indulgence when I heard Charlie’s little voice say “ooh, I would like to try some of that mummy!” When I got over the initial shock I handed him my treat, he took a really small nibble of the edge and declared that he liked it, and that he would be eating the rest of it.

So it was goodbye caramel waffle and hello food thief.

My husband remarked how it was just like having a one year old who suddenly became interested in pinching his parents food. Charlie has never done that before and so missed out completely on that eating milestone. I remember when he was small telling the professionals “he doesn’t steal food from my plate” I wonder if they understood that this is something kids are supposed to do?

Charlie has made great progress this month trying out different types of breads. Last week my lovely friend bought him a new type of mini gingerbread man which he asked if he could try this morning, he enjoyed the packet he had and has taken another 2 packets to school with him.

Last week his teacher told me that he had taken the class to the park to feed the ducks, he gave all the kids 50:50 bread to use, but instead of feeding the ducks all the kids including Charlie ate the bread and the poor ducks went without.

So onwards and upwards…Let hope he keeps going with his new found interest in other people’s food.

Master yoda has ear defenders too!

Driving along the road today Charlie noticed this poster and got really excited, he still hasn’t quite got the hang of pointing things out with your finger as most typical kids do so it took me a while to see what it was he was so excited to show me.

Look mummy “Master yoda has ear defenders too!”

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Before we got married, and right up until the kids came along there were two places that the hubby and I loved to spend most of our time the church and the cinema. Yeah I know, not exactly the wildest places to go, but we were happy.

When Lillie was born we pretty much carried on as we had before with church, and as she was old enough we would introduce her to the cinema. We had no plans to change the way we lived but once charlie came along things changed dramatically.

Every cinema trip was a disaster, Lillie would watch the film Charlie would do his best to escape, we had no idea why, We couldn’t leave because Lillie would cry, we couldn’t stay because Charlie would cry, or run or want to disappear up inside my top. There was no way on this earth that one adult could take the two children alone, it just wasn’t safe enough with them both going in opposite directions.

It wasn’t long before we found that every sunday morning was beginning to follow the same pattern as the cinema. Not being able to manage in church was a far worse problem for us than the cinema thing because thats where most of our friends were. Having a child who couldn’t manage to get through a sunday morning meant some serious social isolation was headed our way.

This time last year, after we had walked out of yet another church service in tears. We were lost and confused and praying that God would give us some insight as to what the hell was going on and how we could make things easier.

Then one day the answer came, I came across a book which changed my life, It was old and tatty and kind of out of date, there are now newer versions with more up to date information,  but this is the book that I will remember forever, this is the book that finally held the answers we had spent four years looking for.

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The book explained how the problems that we were seeing with the eating were related to all of the other things that we didn’t understand.  It explained how not wanting to have his head touched was related to not wanting to wear socks in the car, which was related to not being able to cope with loud noises and on and on and on…

Suddenly it all started to come into focus.

Suddenly we had a way forward,

Suddenly there was hope.

Lots of you will have seen my kids sporting their ear defenders. This was one of the first and simplest changes we made, and one that has had the biggest impact on our ability to go out and have fun as a family.

Today is the first day of half term, this morning we went to the cinema and bowling alley, neither of these activities would have been imaginable without the ear defenders. Lillie doesn’t need hers as much as Charlie, but to keep things even we carry 2 pairs, they both wore them, the whole time, they were happy and comfortable and the whole trip was so easy.

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Later in the afternoon we popped out to the shops, we were only going for milk so we didn’t take the ear defenders with us, when an ambulance came past both kids stopped and covered their ears, they waited for the ambulance to pass, I waited for them to be ready and then we all carried on as if nothing had happened, no fussing, no crying, no meltdowns.

They are learning how to self-regulate, this is progress.

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Most cinemas now do autism friendly screenings, which is wonderful and so important, but we love to have the flexibility to be able to go where we want to when we want to, with only a few small adaptations so that our kids can be part of the fun too.

Victory at the dentist

victory at the dentist

I love this picture, I really do. It was taken this spring, during our latest visit to the dentist with both kids.

Our first taste of victory.

Our first ever successful visit to the dentist with Charlie.

We had worked hard to prepare him for it, using the sensory integration techniques we had learnt alongside picture stories explaining to him what would happen and when.

We had been using the Wilbarger protocol brushing and joint compressions technique** faithfully every 90 minutes of every day for a few months prior to the visit.

We chose a quiet time of day to visit, when the other local kids would be in school, early in the day when the smell of the products used in the dentist’s are at their least intense.

We encouraged him to wear his ear defenders.

We talked to the dentist, we explained his diagnosis and the types of things that might bother him.

She was brilliant, I cannot thank her enough for the gentle way in which she handled him and the whole visit. Although she has met Charlie before he had always been very uncooperative.

She gave him the option to go first or second, he chose second. She talked him through what was happening during his sister’s examination so that he would understand and could anticipate what would happen during his turn.

She spoke to him in a kind gentle voice with simple sentences and helped him to feel like he was in control of his body and what was happening.

Lillie was great too, she showed him what to do and help him see that it didn’t hurt. She has become very good at supporting her brother in new situations. I am so proud of her and the maturity that she is able to show.

Then it happened, for the first time ever he confidently climbed into the chair, lay back and opened his mouth. He allowed her to do a full examination of his teeth, he even let her put some special protective cream onto his teeth.

It worked, it was beautiful.

It was like watching a miracle unfold in front of my eyes.

We were actually speechless.

I love how relaxed he looks and the big smile on his face.

I snapped this picture with my phone, I didn’t ask for permission because i was too scared that i would ruin the moment.

 

** the brushing technique should only be used under the instruction and supervision of a qualified occupational therapist trained in sensory integration, it works for us, it may not work for everyone.